1-Year-Old Henley Diagnosed With MPS Prepares For Bone Marrow Transplant

1-year-old Coolamon local, Henley Carey, has been diagnosed with a rare genetic disorder called Mucopolysaccharidosis, or MPS, which affects his major organs, bones and connective tissues.

Henley is currently on a lifesaving drugs program, and travels to Sydney every week with his mum, Alicia, for enzyme replacement therapy, leaving his dad Sean and 3-year-old brother Darcy behind. 

While there is no cure for Henley, a bone marrow transplant will give him more quality of life and add years to his life. Henley is preparing for the transplant, alongside his big brother Darcy, who will be the bone marrow doner.

But the back and forth travel, hotel costs, and medical fees are piling up for the small family, which is why Bronte & Sam wanted to share Henley's story and ask the Riverina for help, no matter how small. 

Hear more of Henley's story in the catch up below, then head to Henley's GoFundMe page to give what you can.