By Renee Bogatko
As many local families are all too aware, there’s nothing more heart-wrenching than seeing your child suffer.
Unfortunately, that’s what the family of 16-year-old Canberra boy Tyrone Barratt are going through at the moment.
And they need our help.
Tyrone was born without the right hemisphere of his brain which has led to him suffering severe cerebral palsy.
Late last year, he began having problems with his cerebral shunt which drains the excess fluid from his brain – resulting in several hospital trips and surgery.
The surgery was only a temporary fix though, with Tyrone undergoing another procedure to hopefully fix the problem for good.
But he became unwell again earlier this month and was rushed to Sydney where he underwent another emergency operation to relieve pressure on his brain.
He’s since been transferred back to Canberra Hospital, where his parents are trying to get a home support system set up for him.
Out of desperation, Tyrone’s mum Alarna contacted Palliative Care Australia and the Minister’s office, to hopefully get things moving.
“All we are asking for is an advanced care plan in the event he becomes acutely unwell again. This care plan will prevent us being forced to make horrible decisions regarding Tyrone’s life as a reaction to an acute situation, which we have had to do already several times,” Alarna said.
“Palliating Tyrone would also allow services at home to help us manage his chronic symptoms. I can’t understand why it’s so hard for doctors to accept they can’t fix Tyrone and that this is his new quality of life.”
Tyrone hasn’t been able to attend much school this year, resulting in his parents having to take extended time off work.
That’s put a major strain on their finances, as the bills continue to pile in.
They’re not even sure if they’ll be able to afford basics like rent.
Alarna’s friend Brooke Seivers set up a GoFundMe page for Tyrone – to help raise funds for his family.
You can help by donating here.
You can also send your messages of love and support on our Facebook page.
Let’s get behind this family and show the rest of the world why Canberrans are the most generous and loving people around!